Factsheet – EU delivering on rare diseases for patients and families
The EU’s action on rare diseases strives to improve access to knowledge, diagnosis, and treatment of patients with rare diseases through funding research on rare diseases and newborn screening, making available dedicated tools, such as the telemedicine tool, pooling of resources and cooperation.
Read the news announcement and the factsheet published by Directorate-General for Health and Food Safety on 24 February 2025.
OpenEdition vous propose de citer ce billet de la manière suivante :
lsgilbert (18 mars 2025). Factsheet – EU delivering on rare diseases for patients and families. ELSIBI. Consulté le 19 février 2026 à l’adresse https://doi.org/10.58079/13id3





