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Policy paper – England Rare Diseases Action Plan 2024

The third action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.

The UK government and devolved administrations published the UK Rare Diseases Framework in January 2021, setting out a shared vision for addressing health inequalities and improving the lives of people living with rare diseases across the UK.

Find out more on  England Rare Diseases Action Plan 2024 – GOV.UK (www.gov.uk),  and on England Rare Diseases Action Plan 2024: annexes – GOV.UK (www.gov.uk).

Ministerial foreword

In 2021 we published the UK Rare Diseases Framework, this set out priorities to address the needs of people living with rare conditions. As part of this framework, we publish an action plan each year over its 5-year lifespan. This year’s England Rare Disease Action Plan provides an update of the significant progress made against actions outlined in the 2023 action plan and 2022 action plan and proposes 7 new actions to continue to address the priorities highlighted in the UK Rare Diseases Framework.

Published on the 29th of february 2024. Read the main report, the full news here.


OpenEdition vous propose de citer ce billet de la manière suivante :
adelage (21 mai 2024). Policy paper – England Rare Diseases Action Plan 2024. ELSIBI. Consulté le 18 février 2026 à l’adresse https://doi.org/10.58079/11p19


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