Policy paper – England Rare Diseases Action Plan 2023

The second action plan setting out how the Department of Health and Social Care and delivery partners will implement the UK Rare Diseases Framework in England.

The UK government and devolved administrations published the UK Rare Diseases Framework in January 2021, setting out a shared vision for addressing health inequalities and improving the lives of people living with rare diseases across the UK.

The framework outlined 4 key national priorities:

• helping patients get a final diagnosis faster
• increasing awareness among healthcare professionals
• better co-ordination of care
• improving access to specialist care, treatment and drugs

Follow the links to read the England Rare diseases Action Plan 2023 main report and the annexes.

Published on the 28th of february 2023. More information following this link.