RareData EU: Guidance for real world data studies and building registries
The consultancy RareData EU has published a white paper on planning and developing real-world data (RWD) studies and registries for rare diseases. It provides comprehensive practical advice to professionals on topics such as common challenges in clinical trials, the role of patient engagement, and technical aspects of building registries.
OpenEdition vous propose de citer ce billet de la manière suivante :
bartosb (5 octobre 2023). RareData EU: Guidance for real world data studies and building registries. ELSIBI. Consulté le 16 janvier 2025 à l’adresse https://doi.org/10.58079/o6f7
